People with rare diseases can be victims of hate attacks
On the International Day for Countering Hate Speech, June 18, let’s remember that no one is immune from hate speech and everyone has a role in fighting it.
WHO: Economy is bad for health and must review its priorities
“The economy, until now, has measured the price of everything and the value of nothing. This needs to change. Healthcare spending is treated as a cost rather than a long-term investment. Economic policy has not favored society.”
December, 12: International Day of Health Universal Coverage
December 12 was officially established by the United Nations as the International Day of Universal Health Coverage (UHC) in 2012. In 2015, this watchword was included in Goal (SDG) 3 of the 2030 Agenda for Sustainable Development, specifically in your target 3.8.
Towards its 75th anniversary, UDHR is a beacon on rare diseases
“The Universal Declaration of Human Rights is a miracle text,” said Volker Türk, UN High Commissioner for Human Rights. “When the world emerged from cataclysmic events, the Declaration established universal rights and recognized the equal worth of every person.”
WHO: Health inequities lead to early deaths of many people with disabilities
A new report from the World Health Organization shows evidence of a higher risk of premature death and illness among many people with disabilities.
The Chamber of Deputies: Brazil does not comply with UN recommendations on Human Rights
‼️ Reports presented this Monday (14) by the Observatório Parlamentar (Portuguese version) of the Commission on Human Rights and Minorities of the Chamber of Deputies show that Brazil is not complying with the recommendations of the United Nations (UN) regarding the improvement of the human rights situation in the country. It has repercussions on the lives of …
Talkin’ about a Revolution – Tracy Chapman
While not as successful as “Fast Car” (the first single from Tracy Chapman’s debut album), “Talkin’ About a Revolution” has endured. The song focuses on poverty with lines like: “While they’re standing in welfare lines/Crying at the door of the salvation armies/Wasting time in unemployment lines/Sitting around waiting for a revolution”. In 2011, the song …
“Atypical mothers” ask for measures in a public hearing in the Chamber of Deputies
Mothers of people with disabilities or rare diseases, known as atypical mothers, asked for public support programs, in a public hearing at the Commission for the Defense of Women’s Rights of the Chamber of Deputies, this Friday (11). The deputies Tereza Nelma (PSD-AL) and Léo Moraes (PODE-RO), who requested the debate, cited a 2019 survey by the Brazilian …
Lula, elected, will resume Agenda 2030, vetoed by Bolsonaro
The president-elect, Luiz Inácio Lula da Silva, will return to some themes linked to the Sustainable Development Goals (SDGs) of the 2030 Agenda. It is what can be seen when examining his government plan. O documento, de 21 páginas, contains guidelines for the “Program for the Reconstruction and Transformation of Brazil Lula Alckmin 2023-2026”. It …
Rare diseases, disabilities and “democratic recession”
CLÁUDIO CORDOVIL It was announced on March 21 the new composition of the National Council for the Rights of Persons with Disabilities (CONADE) for three years (2022-2025). Among the new advisors, representations linked to the universe of rare diseases: Febrararas , AFAG e Associação Brasileira de Síndrome de Williams (ABSW) e Retina Brasil . This is the conclusion …
