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Lula, elected, will resume Agenda 2030, vetoed by Bolsonaro

The president-elect, Luiz Inácio Lula da Silva, will return to some themes linked to the Sustainable Development Goals (SDGs) of the 2030 Agenda. It is what can be seen when examining his government plan. O documento, de 21 páginas, contains guidelines for the “Program for the Reconstruction and Transformation of Brazil Lula Alckmin 2023-2026”. It …

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Rare diseases, disabilities and “democratic recession”

CLÁUDIO CORDOVIL It was announced on March 21 the new composition of the National Council for the Rights of Persons with Disabilities (CONADE) for three years (2022-2025). Among the new advisors, representations linked to the universe of rare diseases: Febrararas , AFAG e Associação Brasileira de Síndrome de Williams (ABSW) e Retina Brasil .  This is the conclusion …

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How does cinema represent people living with rare diseases?

A recent study analyzed 20 films from the mass culture that, in some way, portrayed people living with rare diseases and found that these films rarely address the clinical aspects of these diseases. The plots focus more on the patient’s daily life problems. And if scientific elements appear, they are not there for medical education …

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Social justice: a civilizing principle that also did not reach rare diseases

TATIANE VARGAS* Social justice is a civilizing principle linked to the conviction that everyone deserves the right to live with dignity. Its main axes of action are the fight against poverty and the fight against any discrimination that prevents individuals from enjoying a good and safe life. According to Pablo Dias Fortes, coordinator of the …

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